Sunday, October 23, 2011

Eras Defined by Media


Eras Defined by Media

We define eras by the media of the time
Whatever was prevalent is what is remembered
Cave paintings, mosaics, bones

The snippets of music and writing
Art and sculpture
Even some photographs
Other artifacts
Those are all we ever have
To glean what it was like to live
Way back when

No matter how far
We actually take the way-back machine

What we have now
Defines our era
We look around and see media
All around us
Records and books
Photos and recordings
Digital storage devices
Newsreels and sheet music
Social networks and television
Blogs and v-logs

What will Your slice of media
Tell the people of tomorrow
About you?

5/12/11
Form: free


I actually wrote this before the Occupy Movements got rolling. Hell, I wrote this before I even knew that the Occupy Movements existed. 

We see now how the media of today and the social media networking is replacing the Main Stream Media (MSM) and their propaganda machine for getting the messages of what is happening NOW out to the masses. Word of mouth moves as fast as people can click a link, now. 

Poor outmoded MSM. 

Their media blackouts just aren't working like they used to. 


Saturday, October 22, 2011

Dehumanizing Pain


Dehumanizing Pain

Pulsing…
Pounding…
Debilitating…
Dehumanizing…
Pain.

Constant and unrelenting
Chipping away at what passes for sanity
Till less than an animal is left
Keening to the colorless sky
All joy and hope gone
From soul-dead eyes

Form: depressed shit
10-6-11


Pain in small doses can be fun, though when it is constant, it can wear away at the self. There are tricks to keeping the self from eroding away, and there is help available. If you suffer from constant pain, in addition to the doctors and the medication, seek therapy and counseling. 
You are a whole person. 

Be treated like one.

Friday, October 21, 2011

Chanting Like It Will Get You Something


Chant Chant Chant

Chant that number
Like it would actually help
You win something
And end up looking like
A complete moron
Who still lost

5/17/11
Form: free


I have spent a lot of time in casinos and in bingo halls in particular. Something that I have seen is people chanting a card or number that they need to win something big, as if it would help. 
I have been guilty of doing this, which makes me, too, look like a complete moron as I lose.

What's funny is all of those times that I look like a moron seem to be magically transported away the one time it "magically" works and I win! 

Not really.

MS Medication is SCARY FUCKING SHIT


Reviewing Meds

Wow.

MS Medication is some seriously scary shit. My doctor initially wanted me to try Rebif. Then we got to discussing in broad strokes some of the side effects, which, one of the major ones is depression. I mentioned that I have a tendency (a tendency HA!) to be slightly (SLIGHTLY?!?!?!?!) bi-polar. Then I expanded that for her.

After that enlightening discussion, she changed her recommendation to a drug called Copaxone, which I would have to inject every day.

Now, there are a myriad of MS medication options open and available to me. I asked for information about a bunch of them so that I could compare my options.

I can’t say this enough: MS Medication is some SCARY FUCKING SHIT

What side effects can this medication cause?
Glatiramer may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away:
  • pain, redness, swelling, itching, or lump in the place where you injected glatiramer
  • weakness
  • flushing
  • depression
  • abnormal dreams
  • pain in the back, neck, or any other part of the body
  • severe headache
  • loss of appetite
  • diarrhea
  • nausea
  • vomiting
  • weight gain
  • swelling of the hands, feet, ankles, or lower legs
  • purple patches on skin
  • joint pain
  • confusion
  • nervousness
  • crossed eyes
  • difficulty speaking
  • shaking hands that you cannot control
  • sweating
  • ear pain
  • painful or changed menstrual periods
  • vaginal itching and discharge
  • urgent need to urinate or defecate
  • tightness in muscles
  • white patches in the mouth
Some side effects can be serious. The following symptoms are uncommon, but if you experience any of them, call your doctor immediately. In some cases, your doctor may tell you to stop using glatiramer:
  • dizziness
  • excessive sweating
  • chest pain
  • sore throat, fever, chills, and other signs of infection
  • runny nose
  • coughing
  • fast heartbeat
  • fainting
  • skin rash
  • hives
  • itching
  • difficulty breathing or swallowing
  • very severe pain at the injection site
Glatiramer affects your immune system, so it may increase your risk of developing cancer or a serious infection. Talk to your doctor about the risks of using this medication.
Glatiramer may cause other side effects. Call your doctor if you have any unusual problems while using this medication.
If you experience a serious side effect, you or your doctor may send a report to the Food and Drug Administration's (FDA) MedWatch Adverse Event Reporting program online [at http://www.fda.gov/Safety/MedWatch] or by phone [1-800-332-1088].
((Glatiramer is the base name for Copaxone))

Now, the above is the side effect list for Copaxone as listed from  http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000225/  Oh wait: That’s the drug I am probably going to be put on. Go on, re-read the list. I’ll wait.

Some of the other drugs are worse. Like the one where at the top of the list they warn of the risk of a brain infection that can result in death or severe disability, and then goes down the list. As far as I am concerned, I am perfectly happy never going on that fucking drug.

MS Medication is Scary Fucking Shit.

There are also drugs that I could go on later that are also Chemo drugs. Whee!

Not.

Fucking fuckity fuck fuck!!!!

/rant… for now

Thursday, October 20, 2011

Do I Live the Nightmare or the Dream?


Do I Live the Nightmare or the Dream?

Nightmare ridden sleep of being
Always alone facing life,
No one wanting me…

Even as it happens
During the experience I know
That it isn’t true.

Do I live in the nightmare?
If so, I would hope to
Never wake from this dream I live.

5/30/11
Form: free


I wrote this poem before I had this last flare up of my MS, or I should say, the first one that got me this diagnosis. The question I suppose is whether I am living the nightmare or the dream. The truth is, though, that I don't think that I would want to be alone and perfectly healthy, if it meant that I would be alone always. Alone, I am not the nicest person. It helps me to have touchstones to remember why I need to try to be a good person. Perhaps that is a little co-dependent, but I am aware of it. I am still responsible for me and how I act, it is not on my partners and my friends. I don't pretend to put them on some sort of pedestal or anything, but them being around me makes me want to be someone better than I would be without them. 
Maybe that's silly. 

It didn't take this disease for me to realize it, though. I knew it before, but looking at this poem that I wrote I ask myself that question: If a cure meant being alone for the rest of my life, would I take it? I say no. Right now, I say no. 

Then again, ask me if the Universe decides to take away more of my ability to function. I might have turned bitter enough to change my tune. I hope not though. That would mean the disease had won and there would be less of the person that I like left. I don't want this disease to win that way. 

MS will become something that is just a thing, not something that rules me. At least, that's what I am working towards. It's only been a month, after all. It's all a work in progress.

Friday, October 14, 2011

Soul Eating Ice Fox






Beware the soul-eating ice fox. It will eat the stuff of your eternity. It tastes like strawberries. :)

From the Bright to the Dark and Everything In Between


From the Bright to the Dark and Everything In Between

When I got the news
I wanted to hide
Like an ostrich
With my head buried
Deep in the safety of the sand
Pretending that it would all
Just go away and pass me by
But doing that with anything in life
Is not a viable option
For me, or anyone else, really
To do that is really to choose to die
And I choose to live my life

It isn’t the first time
This choice has come to me
Though, it is one of the hardest choices to make
This road before me is hard and dark
But I won’t be walking it alone
And even if I were
I’d like to think that I would choose
To walk down it anyway
With my head held high
If only to see what was down this path
No matter how wonderful or horrible
The fate that awaited me

If this is the only life I have
Or the only life I will ever get to remember
Then I deserve to experience everything
That it has to offer me
From the bright points to the dark
And everything in between

Form: cautiously hopeful
10-6-11