Friday, October 21, 2011

MS Medication is SCARY FUCKING SHIT


Reviewing Meds

Wow.

MS Medication is some seriously scary shit. My doctor initially wanted me to try Rebif. Then we got to discussing in broad strokes some of the side effects, which, one of the major ones is depression. I mentioned that I have a tendency (a tendency HA!) to be slightly (SLIGHTLY?!?!?!?!) bi-polar. Then I expanded that for her.

After that enlightening discussion, she changed her recommendation to a drug called Copaxone, which I would have to inject every day.

Now, there are a myriad of MS medication options open and available to me. I asked for information about a bunch of them so that I could compare my options.

I can’t say this enough: MS Medication is some SCARY FUCKING SHIT

What side effects can this medication cause?
Glatiramer may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away:
  • pain, redness, swelling, itching, or lump in the place where you injected glatiramer
  • weakness
  • flushing
  • depression
  • abnormal dreams
  • pain in the back, neck, or any other part of the body
  • severe headache
  • loss of appetite
  • diarrhea
  • nausea
  • vomiting
  • weight gain
  • swelling of the hands, feet, ankles, or lower legs
  • purple patches on skin
  • joint pain
  • confusion
  • nervousness
  • crossed eyes
  • difficulty speaking
  • shaking hands that you cannot control
  • sweating
  • ear pain
  • painful or changed menstrual periods
  • vaginal itching and discharge
  • urgent need to urinate or defecate
  • tightness in muscles
  • white patches in the mouth
Some side effects can be serious. The following symptoms are uncommon, but if you experience any of them, call your doctor immediately. In some cases, your doctor may tell you to stop using glatiramer:
  • dizziness
  • excessive sweating
  • chest pain
  • sore throat, fever, chills, and other signs of infection
  • runny nose
  • coughing
  • fast heartbeat
  • fainting
  • skin rash
  • hives
  • itching
  • difficulty breathing or swallowing
  • very severe pain at the injection site
Glatiramer affects your immune system, so it may increase your risk of developing cancer or a serious infection. Talk to your doctor about the risks of using this medication.
Glatiramer may cause other side effects. Call your doctor if you have any unusual problems while using this medication.
If you experience a serious side effect, you or your doctor may send a report to the Food and Drug Administration's (FDA) MedWatch Adverse Event Reporting program online [at http://www.fda.gov/Safety/MedWatch] or by phone [1-800-332-1088].
((Glatiramer is the base name for Copaxone))

Now, the above is the side effect list for Copaxone as listed from  http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000225/  Oh wait: That’s the drug I am probably going to be put on. Go on, re-read the list. I’ll wait.

Some of the other drugs are worse. Like the one where at the top of the list they warn of the risk of a brain infection that can result in death or severe disability, and then goes down the list. As far as I am concerned, I am perfectly happy never going on that fucking drug.

MS Medication is Scary Fucking Shit.

There are also drugs that I could go on later that are also Chemo drugs. Whee!

Not.

Fucking fuckity fuck fuck!!!!

/rant… for now

1 comment:

maggie.danhakl@healthline.com said...

Hi,

Healthline just launched a video campaign for MS called "You've Got This" where individuals living with MS can record a short video to give hope and inspiration those recently diagnosed with MS.

You can visit the homepage and check out videos from the campaign here: http://www.healthline.com/health/multiple-sclerosis/youve-got-this

We will be donating $10 for every submitted campaign to the National MS Society, so the more exposure the campaign gets the more the videos we'll receive and the more Healthline can donate to MS research, support groups, treatment programs, and more.

We would appreciate if you could help spread the word about this by sharing the You've Got This with friends and followers or include the campaign as a resource on your page: http://ranting-and-raving-of-the-mad.blogspot.com/2011/10/ms-medication-is-scary-fucking-shit.html

Please let me know if this is possible and if you have any questions. And, if you know anyone that would be interested in submitting a video, please encourage them to do so.

Best,
Maggie Danhakl • Assistant Marketing Manager
p: 415-281-3124 f: 415-281-3199

Healthline • The Power of Intelligent Health
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